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    Last Updated: 10/30/2025

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    MediFind found 14 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Saint Louis, MO. Of these, 13 are Experienced and 1 are Advanced.

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    14 providers found
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Austin M. Dalrymple
      Pediatric Rheumatology | Pediatrics | Rheumatology
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Austin M. Dalrymple
      Pediatric Rheumatology | Pediatrics | Rheumatology

      Ssm Health Care Group

      1465 S Grand Blvd, 
      Saint Louis, MO 
       (2.2 miles away)
      314-577-5641
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients

      Austin Dalrymple is a Pediatric Rheumatologist and a Pediatrics provider in Saint Louis, Missouri. Dr. Dalrymple is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Juvenile Idiopathic Arthritis (JIA), Ehlers-Danlos Syndrome (EDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Systemic Lupus Erythematosus (SLE). Dr. Dalrymple is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Catherine F. Gooch
      Medical Genetics | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Catherine F. Gooch
      Medical Genetics | Pediatrics

      Washington University

      1 Childrens Pl, 
      Saint Louis, MO 
       (3.6 miles away)
      314-273-1006
      Experience:
      9+ years
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients

      Catherine Gooch is a Medical Genetics specialist and a Pediatrics provider in Saint Louis, Missouri. Dr. Gooch has been practicing medicine for over 9 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant, Sandhaus Ben-Ami Syndrome, Rommen Mueller Sybert Syndrome, and Acheiropody. Dr. Gooch is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Sara S. Procknow
      Medical Genetics | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Sara S. Procknow
      Medical Genetics | Pediatrics

      Washington University

      1 Childrens Pl, 
      Saint Louis, MO 
       (3.6 miles away)
      314-273-1006
      Experience:
      9+ years
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients

      Sara Procknow is a Medical Genetics specialist and a Pediatrics provider in Saint Louis, Missouri. Dr. Procknow has been practicing medicine for over 9 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Williams Syndrome, Ehlers-Danlos Syndrome (EDS), and Hypotonia. Dr. Procknow is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Marcia C. Willing
      Medical Genetics | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Marcia C. Willing
      Medical Genetics | Pediatrics
      1 Childrens Pl, Div Ped Genetics & Genomic Med, 
      Saint Louis, MO 
       (3.6 miles away)
      314-454-6093
      Languages Spoken:
      English

      Marcia Willing is a Medical Genetics specialist and a Pediatrics provider in Saint Louis, Missouri. Dr. Willing is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Increased Head Circumference, Early Infantile Epileptic Encephalopathy, Micrognathia, and Isolated Ectopia Lentis.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Antara Dattagupta
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Antara Dattagupta
      Internal Medicine
      1 Barnes Jew Hosp Plz, 
      Saint Louis, MO 
       (3.6 miles away)
      314-362-5060
      Languages Spoken:
      English
      See accepted insurances

      Antara Dattagupta is a primary care provider, practicing in Internal Medicine in Saint Louis, Missouri. Dr. Dattagupta is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Hypophosphatasia (HPP), Ehlers-Danlos Syndrome (EDS), and Osteogenesis Imperfecta.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. John W. Ohman
      Vascular Surgery
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. John W. Ohman
      Vascular Surgery

      Washington University

      1 Barnes Jewish Hospital Plz, 
      Saint Louis, MO 
       (3.6 miles away)
      314-273-7373
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients

      John Ohman is a Vascular Surgeon in Saint Louis, Missouri. Dr. Ohman is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Thoracic Outlet Syndrome, Thoracic Aortic Aneurysm, Abdominal Aortic Aneurysm (AAA), Tenotomy, and Carotid Artery Surgery. Dr. Ohman is currently accepting new patients.

      Advanced in Ehlers-Danlos Syndrome (EDS)

      Dr. Janet L. Alvarado
      Internal Medicine
      Advanced in Ehlers-Danlos Syndrome (EDS)

      Dr. Janet L. Alvarado
      Internal Medicine

      Hshs Medical Group Inc

      1512 N Green Mount Rd, Suite 108, 
      Ofallon, IL 
       (14.9 miles away)
      618-624-5510
      Languages Spoken:
      English
      See accepted insurances

      Janet Alvarado is a primary care provider, practicing in Internal Medicine in Ofallon, Illinois. Dr. Alvarado is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Necrosis, Cellulitis, Movement Disorders, and Parkinson's Disease.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Stephen R. Braddock
      Medical Genetics | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Stephen R. Braddock
      Medical Genetics | Pediatrics

      Ssm Health Care Group

      10101 Woodfield Ln, 
      Saint Louis, MO 
       (11.5 miles away)
      608-280-4647
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients

      Stephen Braddock is a Medical Genetics specialist and a Pediatrics provider in Saint Louis, Missouri. Dr. Braddock is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Chromosome 20 Trisomy, Coloboma, Cerebellar Hypoplasia, and CHARGE Syndrome. Dr. Braddock is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Amana N. Nasir
      Pediatric Gastroenterology | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Amana N. Nasir
      Pediatric Gastroenterology | Pediatrics
      615 S New Ballas Rd, Children's Hospital, Ground Floor, Suite Y-g224, 
      Saint Louis, MO 
       (13.3 miles away)
      314-251-5550
      Languages Spoken:
      English, Arabic, Punjabi, Urdu
      See accepted insurances
      Accepting New Patients

      Amana Nasir is a Pediatric Gastroenterologist and a Pediatrics provider in Saint Louis, Missouri. Dr. Nasir is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Lactose Intolerance, Eosinophilic Esophagitis, Viral Gastroenteritis, and Encopresis. Dr. Nasir is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Gary M. Goodman
      Pediatric Allergy and Immunology | Pediatrics | Allergy and Immunology
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Gary M. Goodman
      Pediatric Allergy and Immunology | Pediatrics | Allergy and Immunology

      Davis, Wright, Berdy, And Suffian, PC

      456 N New Ballas Rd, Suite 129, 
      Saint Louis, MO 
       (13.4 miles away)
      314-569-1881
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients
      Offers Telehealth

      Gary Goodman is a Pediatric Allergy and Immunologist and a Pediatrics provider in Saint Louis, Missouri. Dr. Goodman is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Grass Allergy, Allergic Rhinitis, Sinusitis, and Common Variable Immune Deficiency. Dr. Goodman is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Dharam P. Goel
      Pediatric Cardiology | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Dharam P. Goel
      Pediatric Cardiology | Pediatrics
      621 S New Ballas Rd, Suite 281-a, 
      Saint Louis, MO 
       (13.4 miles away)
      314-251-6777
      Languages Spoken:
      English, Hindi
      See accepted insurances
      Accepting New Patients

      Dharam Goel is a Pediatric Cardiologist and a Pediatrics provider in Saint Louis, Missouri. Dr. Goel is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ventricular Septal Defects, Bicuspid Aortic Valve, Ebstein's Anomaly, and DiGeorge Syndrome. Dr. Goel is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Robert J. Schneider
      Rheumatology
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Robert J. Schneider
      Rheumatology
      3023 N Ballas Rd, Ste 500d, 
      Saint Louis, MO 
       (13.4 miles away)
      314-996-7930
      Languages Spoken:
      English
      See accepted insurances

      Robert Schneider is a Rheumatologist in Saint Louis, Missouri. Dr. Schneider is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Rheumatoid Arthritis (RA), Polymyalgia Rheumatica, Rhizomelic Pseudopolyarthritis, and Psoriatic Arthritis.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Sona S. Kamat
      Rheumatology
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Sona S. Kamat
      Rheumatology

      West County Rheumatology LLC

      13100 Manchester Rd, Suite 70, 
      Saint Louis, MO 
       (14.4 miles away)
      314-983-9898
      Languages Spoken:
      English, Hindi
      See accepted insurances
      Accepting New Patients

      Sona Kamat is a Rheumatologist in Saint Louis, Missouri. Dr. Kamat is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Rheumatoid Arthritis (RA), Systemic Sclerosis (SSc), Scleroma, and Psoriatic Arthritis. Dr. Kamat is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Steven A. Taylor
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dr. Steven A. Taylor
      Family Medicine

      Hshs Medical Group Inc

      1512 N Green Mount Rd, Suite 108, 
      Ofallon, IL 
       (14.9 miles away)
      618-624-5510
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients

      Steven Taylor is a primary care provider, practicing in Family Medicine in Ofallon, Illinois. Dr. Taylor is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Benign Paroxysmal Positional Vertigo, Empyema, Sinusitis, and Familial Hypertension. Dr. Taylor is currently accepting new patients.

      Showing 1-14 of 14

      Last Updated: 10/30/2025

      What is the definition of Ehlers-Danlos Syndrome (EDS)?

      Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

      When should I see an Ehlers-Danlos Syndrome (EDS) doctor near Saint Louis, MO?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor near Saint Louis, MO?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Ehlers-Danlos Syndrome (EDS) doctor near Saint Louis, MO?

      You can find an Ehlers-Danlos Syndrome (EDS) doctor in any of the 10 largest U.S. cities by clicking below:

      Ehlers-Danlos Syndrome (EDS) doctor near New York, NY
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      Ehlers-Danlos Syndrome (EDS) doctor near Houston, TX
      Ehlers-Danlos Syndrome (EDS) doctor near Phoenix, AZ
      Ehlers-Danlos Syndrome (EDS) doctor near Philadelphia, PA
      Ehlers-Danlos Syndrome (EDS) doctor near Atlanta, GA
      Ehlers-Danlos Syndrome (EDS) doctor near Boston, MA
      Ehlers-Danlos Syndrome (EDS) doctor near Dallas, TX
      Ehlers-Danlos Syndrome (EDS) doctor near San Jose, CA

      How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors near Saint Louis, MO?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors near Saint Louis, MO?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor near Saint Louis, MO?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

      Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor near Saint Louis, MO?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors near Saint Louis, MO?

      Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

      Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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